Yet another person in the Down syndrome community (I’m sorry, a community with people who have Down syndrome in it) has sent me an email saying that it’s wrong for me to say that Casey is “autistic” instead of saying that he has autism. Anyone outside the special needs community reading that is scratching their… Continue reading Person First Language: I can’t win.
In a few weeks we’ll have moved for the third time in two years, over 7,000 miles between the moves. As we’ve bounced around, I found myself fighting to make a home out of an impermanent placement. It’s been tough, but wonderful. In these last two years of upheaval, I’ve found that home isn’t so… Continue reading Home
Whether you believe it or not, I choose my words carefully on this blog. I wrote two posts about abortion and Down syndrome. The first post I wrote on in two years ago was my first post to ever go ‘viral’. It was read and shared by people who believed exactly as I do. I… Continue reading My Message Was Lost With My Words
I wish I could just walk away without saying anything. I wish I could say that I didn’t even care to read the posts or the comments. I wish I could say it didn’t matter to me that people called me the worst things anyone could call a mother. I wish. I was honest. I… Continue reading Thick skinned.
Today’s post is by my friend Deanna from Everything and Nothing from Essex. She has a daughter, Addison, and a boy, Carter and another boy on the way. Addison has Down syndrome and is the most expressive child I think I’ve ever seen. Every time I get on Instagram, I scroll scroll scroll to see… Continue reading Creating Toddler Adventures
Peyton will do just about anything to stall his bedtime. That stalls mine and Lance’s together time (read: sit ‘together’ on the couch while we play on our phones ‘time’). So when he came in with something new, it really didn’t phase us any. “My armpit hurts when I stretch like this,” he said as… Continue reading His lovely lymphy lump.
Abby squirmed on my lap as I tried to hold her still as the doctor and her assistant worked. “Shhh, shhhhhh…almost done,” I whispered. And for the first time…ever…in Abby’s life she heard me. My daughter heard me whisper to her. She turned. She listened. She calmed. I was heartbroken when we learned that Abby’s… Continue reading Happy Hearing Day, Abby.